Tyson and Jordan are my cousins and they have Hunter Syndrome. This disease has been passed down through my family for years.  I could have been affected myself, but thankfully wasn’t.  Jordan is 27 and lives in Arizona. Tyson passed away in 2007. He was 21 and a great friend of mine.  My hope is that this film can do so much good for my family and other MPS II families, present and future, by raising awareness.  By getting the word out to a large audience it can help the cause of finding a cure.  Not only would a cure be a great thing for my family and others, but it will aid in finding cures for other genetic diseases.

I want to make a beautiful film that will engage, educate, and inspire everyone who watches.    

My sister and I with Tyson and Jordan

on a family trip in July 2004